August 23, 2026 — 11:58am

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For Mel Schneider and her kids, it is difficult to do spontaneous things such as a movie night or a family holiday – things most families don’t even have to think about.

The Melbourne mother of four, whose 15-year-old son, Wil, has defied the odds to survive several rare illnesses from birth, said even the decision to go for a last-minute drive required careful planning.

“Everything is around where he [Wil] is coping or whether he’s handling it,” Schneider said.

“Taking the kids on a holiday where there are no…

Read the full article at SMH.COM.AU